Today, on Mother’s Day, I am celebrating the women in my life, who have nurtured and mentored and created beauty. They have taught me, shared, and supported and loved freely. Not all of them are mothers – some are aunts, some are grandparents, some are in-laws - some are just women I know.
But I have to pay special tribute in this space – to a group of people who are super special because they share a special journey with me. They have a child with a chronic health condition as well. It is because of this shared journey, that they have been uniquely capable of lending a hand during some of the darkest times of my life. They have been understanding and knowledgeable and empathetic in ways that have literally lifted me from the ground – because they have been on that ground. They have battled in this war – and they know me, what I face… they know my fears that I cannot speak aloud. They have shared their strength and hope, when they barely had enough left for themselves. They share my dreams.
Of course – it is not only mothers – it is fathers – and aunts, and grandmothers, sisters, brothers. It is the people who live with and love somebody who fights everyday living with arthritis. Thank you for your super powers!
Super JA Mom-
She has no unique cape that makes JA disappear
No gold engraved bracelet that deflects worry and fear
There is no super-car that speeds out of a flare
No magic fairy dust sprinkled that administers care
She has no mystic way to eliminate pain
No wand to be waived to make it normal again
There is no shield, no sword that you can actually see
But she is a super warrior, fighting battle daily
Her powers are strength, tenacity, faith, hope and love
Her tools are her heart, her passion, her will to rise above
She catches the tears, and holds back the fears
Give shots, watches labs and hopes months upon years
She researches, and challenges and looks for the clues
She paces the hospital floor waiting for news
The questions, the decisions she faces head-on
She carries her child when his own strength is gone
She would walk the whole world, to make JA go away
She would give her own legs so that he could go play
She worries behind doors, cries quietly at night
But by day, she stands tall and picks up the fight
She educates and advocates and paves the way for her baby
One day and one step at a time, so that maybe
Her little hero won’t need tights and an invisible plane
To fly free of a life living with chronic pain
So don’t let the lack of a latex costume fool you
JA Mom is a super hero, a warrior tried and true.
And victory will be hers.