Author Archives: jiamom

Big Sur, big moments….CCC days 3 and 4

  “Courage and perseverance have a magical talisman, before which difficulties disappear and obstacles vanish into thin air.”  John Quincy Adams So, the riders actually made it to Big Sur on Monday…and soaked their feet in the river, sitting in … Continue reading

Posted in CCC, Overcoming obstacles | Tagged , | Leave a comment

Road warriors….

Just taking a slight detour from the success and great moments happening on the CCC – to spend a moment recognizing what it took for the riders to get there…. and the dangers they face on the road. I have … Continue reading

Posted in CCC | Tagged , | Leave a comment

Back in the Saddle, CCC 2014

I was going to start with an apology intended for those that have no interest in reading about this particular event – but I changed my mind.  Because, frankly, I’m too dang proud of my husband and the other 190 … Continue reading

Posted in Awareness / Advocacy, CCC, Education, Overcoming obstacles | Tagged , , | 1 Comment

Musings on the ice bucket….

I don’t suppose there is any way you could have missed this, because it has been EVERYWHERE. And every day, I think “Surely it is waning… I am seeing the last of it…”, but for weeks, I am consistently proven … Continue reading

Posted in Awareness / Advocacy, Education | Tagged , | 7 Comments

JA Conference in Keystone!

So – Here we are again at our family reunion! It was a bit of a journey to get here… 19 hours driving from California in the family minivan.  Caitlin rode out in another friend’s car – so it was … Continue reading

Posted in Awareness / Advocacy, Education, Family, Juvenile Arthritis Conference | Tagged , , | 2 Comments

I hope you dance….

I wasn’t prepared to cry, really.  I was excited, and maybe a little bit nervous for her.  But I wasn’t prepared for the floodgate to open. It was so simple and mundane - so normal for most parents.  Just one number … Continue reading

Posted in Dealing with the public, Overcoming obstacles | Tagged , | 11 Comments

The party’s over….or at least on hiatus

Well, it’s been two years since Caitlin had her last infusion of Actemra.  Two years since she took her last dose of methotrexate.   Two great years of remission – of vacation from almost everything we lived with her systemic juvenile … Continue reading

Posted in Flares, Humira, Methotrexate, Pain, Prednisone, Remission | Tagged , | 16 Comments