Category Archives: Awareness / Advocacy

Back in the Saddle, CCC 2014

I was going to start with an apology intended for those that have no interest in reading about this particular event – but I changed my mind.  Because, frankly, I’m too dang proud of my husband and the other 190 … Continue reading

Posted in Awareness / Advocacy, CCC, Education, Overcoming obstacles | Tagged , , | 1 Comment

Musings on the ice bucket….

I don’t suppose there is any way you could have missed this, because it has been EVERYWHERE. And every day, I think “Surely it is waning… I am seeing the last of it…”, but for weeks, I am consistently proven … Continue reading

Posted in Awareness / Advocacy, Education | Tagged , | 7 Comments

JA Conference in Keystone!

So – Here we are again at our family reunion! It was a bit of a journey to get here… 19 hours driving from California in the family minivan.  Caitlin rode out in another friend’s car – so it was … Continue reading

Posted in Awareness / Advocacy, Education, Family, Juvenile Arthritis Conference | Tagged , , | 2 Comments

Riding for a Cure – Days 1 and 2!!

The California Coast Classic has just kicked off again, which means my husband is now riding his bike 525 miles down the coast of California.  He’s in good company with 215 other riders – and they are doing it to raise … Continue reading

Posted in Awareness / Advocacy, CCC, Family, Uncategorized | 1 Comment

My JA Family

” Family is like music. Some high notes, some low notes. But always a beautiful song.” I have a huge family – I mean tremendously gigantic. I’ve never even met most of them and probably never will, because there are … Continue reading

Posted in Awareness / Advocacy, Family, Juvenile Arthritis Conference, Overcoming obstacles | Tagged , | 7 Comments

Now, you’ve heard of JAALG….

  “Always remember that the future comes one day at a time.” In all the volunteer work and advocacy I’ve done around juvenile arthritis, it’s one of my greatest privileges and accomplishments… and yet you’ve probably never heard of it. … Continue reading

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The Super-Magnificent, Splendiferous 100th Post!!!

OK… It’s not all that spectacular, really.  But in honor of this 100th post, I thought I would take a look back at where we were when I first started this blog, in September of 2009, and compare it to … Continue reading

Posted in Actemra - Tocilizumab, Anxiety, Awareness / Advocacy, Education, Family, Overcoming obstacles, Remission, Surgery, Uncategorized | 2 Comments