Category Archives: Dealing with the public

I hope you dance….

I wasn’t prepared to cry, really.  I was excited, and maybe a little bit nervous for her.  But I wasn’t prepared for the floodgate to open. It was so simple and mundane – so normal for most parents.  Just one number … Continue reading

Posted in Dealing with the public, Overcoming obstacles | Tagged , | 11 Comments

Thorny Fallout….

I was totally unprepared for the response to my blog last week.  Really… really unprepared. Can I just say that I started writing a blog for me.. and for my family so they would not always have to hear me … Continue reading

Posted in Alternative Therapies, Awareness / Advocacy, Dealing with the public, Education, Overcoming obstacles, Uncategorized | Tagged , | 9 Comments

Gut Reaction….

I’m sure you’ve probably seen the article in NY Times magazine, published two days ago.  It was the most e-mailed article yesterday, and certainly generated a lot of buzz among those in the juvenile arthritis community. In the article, a … Continue reading

Posted in Alternative Therapies, Anxiety, Dealing with the public, Diagnosis, Education, Medications, Remission, Uncategorized | Tagged | 22 Comments

JA Conference 2013 – Dream, Believe, Achieve

“Go confidently in the direction of your dreams.  Live the life you have imagined.” Henry David Thoreau I’ve written about conference a couple of times before, and it’s clearly been very important to my family. Even after years of “education”, I … Continue reading

Posted in Awareness / Advocacy, Dealing with the public, Education, Family, Juvenile Arthritis Conference | 4 Comments

It’s a Wonderful Life…

It’s Christmas Eve…and as I tuck away with all my loved ones to enjoy the blessings of this life, I reflexively ponder all the years that the light and joy of the season were shadowed by Arthritis . The years my daughter could … Continue reading

Posted in Arthritis Walk, Awareness / Advocacy, Dealing with the public, Family, Overcoming obstacles, Remission, Uncategorized | 5 Comments

Action… not Sympathy.

I’ve just returned from the annual development conference for the Arthritis Foundation.  It’s two and a half days of really intense training sessions intended to increase our ability to serve the mission – which is to Improve Lives.  Specifically, if … Continue reading

Posted in Awareness / Advocacy, Dealing with the public, Diagnosis, Family, Overcoming obstacles, Pain | 1 Comment

Absolutely, Wonderfully, Miraculously Average

We had a visit with the rheumatologist a few weeks ago.  We hadn’t seen him for more than two months.  Just like with every doctor visit, it began with the taking of the vitals – height, weight, blood pressure. Caitlin … Continue reading

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