Category Archives: Education

Back in the Saddle, CCC 2014

I was going to start with an apology intended for those that have no interest in reading about this particular event – but I changed my mind.  Because, frankly, I’m too dang proud of my husband and the other 190 … Continue reading

Posted in Awareness / Advocacy, CCC, Education, Overcoming obstacles | Tagged , , | 1 Comment

Musings on the ice bucket….

I don’t suppose there is any way you could have missed this, because it has been EVERYWHERE. And every day, I think “Surely it is waning… I am seeing the last of it…”, but for weeks, I am consistently proven … Continue reading

Posted in Awareness / Advocacy, Education | Tagged , | 7 Comments

JA Conference in Keystone!

So – Here we are again at our family reunion! It was a bit of a journey to get here… 19 hours driving from California in the family minivan.  Caitlin rode out in another friend’s car – so it was … Continue reading

Posted in Awareness / Advocacy, Education, Family, Juvenile Arthritis Conference | Tagged , , | 2 Comments

Now, you’ve heard of JAALG….

  “Always remember that the future comes one day at a time.” In all the volunteer work and advocacy I’ve done around juvenile arthritis, it’s one of my greatest privileges and accomplishments… and yet you’ve probably never heard of it. … Continue reading

Posted in Awareness / Advocacy, Education, Juvenile Arthritis Conference | Tagged , , | Leave a comment

Super JA Mom

Today, on Mother’s Day,  I am celebrating the women in my life, who have nurtured and mentored and created beauty.  They have taught me, shared, and supported and loved freely. Not all of them are mothers – some are aunts, some … Continue reading

Posted in Education, Family, Overcoming obstacles | Tagged , , | 4 Comments

The Super-Magnificent, Splendiferous 100th Post!!!

OK… It’s not all that spectacular, really.  But in honor of this 100th post, I thought I would take a look back at where we were when I first started this blog, in September of 2009, and compare it to … Continue reading

Posted in Actemra - Tocilizumab, Anxiety, Awareness / Advocacy, Education, Family, Overcoming obstacles, Remission, Surgery, Uncategorized | 2 Comments

Thorny Fallout….

I was totally unprepared for the response to my blog last week.  Really… really unprepared. Can I just say that I started writing a blog for me.. and for my family so they would not always have to hear me … Continue reading

Posted in Alternative Therapies, Awareness / Advocacy, Dealing with the public, Education, Overcoming obstacles, Uncategorized | Tagged , | 9 Comments