Category Archives: Uncategorized

Days 3 and 4 – Big Sur and San Simeon

The most beautiful days on the tour also coincide with the weakest cell phone service.  So, we actually never got to talk to Dave much on Monday, as the group rode 40 miles down the gorgeous California Coast to Big Sur … Continue reading

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Riding for a Cure – Days 1 and 2!!

The California Coast Classic has just kicked off again, which means my husband is now riding his bike 525 miles down the coast of California.  He’s in good company with 215 other riders – and they are doing it to raise … Continue reading

Posted in Awareness / Advocacy, CCC, Family, Uncategorized | 1 Comment

The Super-Magnificent, Splendiferous 100th Post!!!

OK… It’s not all that spectacular, really.  But in honor of this 100th post, I thought I would take a look back at where we were when I first started this blog, in September of 2009, and compare it to … Continue reading

Posted in Actemra - Tocilizumab, Anxiety, Awareness / Advocacy, Education, Family, Overcoming obstacles, Remission, Surgery, Uncategorized | 2 Comments

Thorny Fallout….

I was totally unprepared for the response to my blog last week.  Really… really unprepared. Can I just say that I started writing a blog for me.. and for my family so they would not always have to hear me … Continue reading

Posted in Alternative Therapies, Awareness / Advocacy, Dealing with the public, Education, Overcoming obstacles, Uncategorized | Tagged , | 9 Comments

Gut Reaction….

I’m sure you’ve probably seen the article in NY Times magazine, published two days ago.  It was the most e-mailed article yesterday, and certainly generated a lot of buzz among those in the juvenile arthritis community. In the article, a … Continue reading

Posted in Alternative Therapies, Anxiety, Dealing with the public, Diagnosis, Education, Medications, Remission, Uncategorized | Tagged | 22 Comments

Escape from Medical Bill Mountain….

  It’s getting close… so close I can almost see it.  The month when I send my last payment to for the last hospital bill I am paying off.  For the last eleven and a half years, since Caitlin’s original … Continue reading

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It’s a Wonderful Life…

It’s Christmas Eve…and as I tuck away with all my loved ones to enjoy the blessings of this life, I reflexively ponder all the years that the light and joy of the season were shadowed by Arthritis . The years my daughter could … Continue reading

Posted in Arthritis Walk, Awareness / Advocacy, Dealing with the public, Family, Overcoming obstacles, Remission, Uncategorized | 5 Comments