Author Archives: jiamom

21!

Unbelievably, Caitlin is 21 today. The last few years especially have gone by at a head spinning pace…. at least for me.  I tell my kids that life is a lot like one of those funnels at the science museum: … Continue reading

Posted in Uncategorized | 3 Comments

Matt Iseman- Our Celebrity Warrior

OK.  So this one unfortunately has to start with major disclaimers.  I’m so eager to have you get to the meat of my message, that I have to start with all the caveats that will get you past all the … Continue reading

Posted in Awareness / Advocacy, Dealing with the public, Family, Overcoming obstacles, Uncategorized | Tagged , , , , | Leave a comment

(Not such a) Peaceful Easy Feeling

So.  Glenn Frey died today. This makes me sad and weary in numerous ways, especially given all the brilliance that has become ethereal in the past few weeks. It makes me sad as a fan, because the Eagles have been … Continue reading

Posted in Anxiety, Awareness / Advocacy, Dealing with the public | Tagged , | 3 Comments

Transition starts now….

  I am a procrastinator by nature.  Despite years of effort to change that, and despite those many, many times I barely skated in just before a deadline (or even just after) – I still often wait until the 11th … Continue reading

Posted in Awareness / Advocacy, College, Dealing with the public, Education, Overcoming obstacles, Transition, Uncategorized | 2 Comments

Storm Clouds and Silver Linings

I think of myself as an optimistic person. In general, I feel that attitude is one of our best personal tools and that to a great degree, we cannot control what happens to us, only how we respond to it. … Continue reading

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We are officially PRN (aka kicked out:) )

So, we had a rheumatology visit last week.  I’m embarrassed to say it was our first visit in a YEAR.  Our last visit was in May, 2014.  We had another scheduled last September – and then the doctor needed to reschedule … Continue reading

Posted in Overcoming obstacles, Remission | Tagged , , , , , | 8 Comments

How Much for a Cure?

So – nobody won the Mega Millions jackpot last night, which means that it is likely to reach over $250 million for the next draw.  I don’t know about you, but when I think about that kind of money, what … Continue reading

Posted in Awareness / Advocacy, Diagnosis, Flares, Remission, Uncategorized | Tagged , , , , , | 2 Comments