Author Archives: jiamom

We are officially PRN (aka kicked out:) )

So, we had a rheumatology visit last week.  I’m embarrassed to say it was our first visit in a YEAR.  Our last visit was in May, 2014.  We had another scheduled last September – and then the doctor needed to reschedule … Continue reading

Posted in Overcoming obstacles, Remission | Tagged , , , , , | 4 Comments

How Much for a Cure?

So – nobody won the Mega Millions jackpot last night, which means that it is likely to reach over $250 million for the next draw.  I don’t know about you, but when I think about that kind of money, what … Continue reading

Posted in Awareness / Advocacy, Diagnosis, Flares, Remission, Uncategorized | Tagged , , , , , | 2 Comments

Edge of Seventeen….

My daughter Caitlin, my oldest child, turns seventeen tomorrow. Writing it, saying it – doesn’t make it any more believable.  Wasn’t I just carrying her in a backpack? Weren’t we just painting the bedroom pink and thrilling over Princess sheets and … Continue reading

Posted in Awareness / Advocacy, College, Family, Overcoming obstacles, Remission | Tagged , , | 4 Comments

Big Sur, big moments….CCC days 3 and 4

  “Courage and perseverance have a magical talisman, before which difficulties disappear and obstacles vanish into thin air.”  John Quincy Adams So, the riders actually made it to Big Sur on Monday…and soaked their feet in the river, sitting in … Continue reading

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Road warriors….

Just taking a slight detour from the success and great moments happening on the CCC – to spend a moment recognizing what it took for the riders to get there…. and the dangers they face on the road. I have … Continue reading

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Back in the Saddle, CCC 2014

I was going to start with an apology intended for those that have no interest in reading about this particular event – but I changed my mind.  Because, frankly, I’m too dang proud of my husband and the other 190 … Continue reading

Posted in Awareness / Advocacy, CCC, Education, Overcoming obstacles | Tagged , , | 1 Comment

Musings on the ice bucket….

I don’t suppose there is any way you could have missed this, because it has been EVERYWHERE. And every day, I think “Surely it is waning… I am seeing the last of it…”, but for weeks, I am consistently proven … Continue reading

Posted in Awareness / Advocacy, Education | Tagged , | 8 Comments