Author Archives: jiamom

(Not such a) Peaceful Easy Feeling

So.  Glenn Frey died today. This makes me sad and weary in numerous ways, especially given all the brilliance that has become ethereal in the past few weeks. It makes me sad as a fan, because the Eagles have been … Continue reading

Posted in Anxiety, Awareness / Advocacy, Dealing with the public | Tagged , | 2 Comments

Transition starts now….

  I am a procrastinator by nature.  Despite years of effort to change that, and despite those many, many times I barely skated in just before a deadline (or even just after) – I still often wait until the 11th … Continue reading

Posted in Awareness / Advocacy, College, Dealing with the public, Education, Overcoming obstacles, Transition, Uncategorized | 2 Comments

Storm Clouds and Silver Linings

I think of myself as an optimistic person. In general, I feel that attitude is one of our best personal tools and that to a great degree, we cannot control what happens to us, only how we respond to it. … Continue reading

Posted in Uncategorized | 2 Comments

We are officially PRN (aka kicked out:) )

So, we had a rheumatology visit last week.  I’m embarrassed to say it was our first visit in a YEAR.  Our last visit was in May, 2014.  We had another scheduled last September – and then the doctor needed to reschedule … Continue reading

Posted in Overcoming obstacles, Remission | Tagged , , , , , | 8 Comments

How Much for a Cure?

So – nobody won the Mega Millions jackpot last night, which means that it is likely to reach over $250 million for the next draw.  I don’t know about you, but when I think about that kind of money, what … Continue reading

Posted in Awareness / Advocacy, Diagnosis, Flares, Remission, Uncategorized | Tagged , , , , , | 2 Comments

Edge of Seventeen….

My daughter Caitlin, my oldest child, turns seventeen tomorrow. Writing it, saying it – doesn’t make it any more believable.  Wasn’t I just carrying her in a backpack? Weren’t we just painting the bedroom pink and thrilling over Princess sheets and … Continue reading

Posted in Awareness / Advocacy, College, Family, Overcoming obstacles, Remission | Tagged , , | 5 Comments

Big Sur, big moments….CCC days 3 and 4

  “Courage and perseverance have a magical talisman, before which difficulties disappear and obstacles vanish into thin air.”  John Quincy Adams So, the riders actually made it to Big Sur on Monday…and soaked their feet in the river, sitting in … Continue reading

Posted in CCC, Overcoming obstacles | Tagged , | Leave a comment