Category Archives: Awareness / Advocacy

(Not such a) Peaceful Easy Feeling

So.  Glenn Frey died today. This makes me sad and weary in numerous ways, especially given all the brilliance that has become ethereal in the past few weeks. It makes me sad as a fan, because the Eagles have been … Continue reading

Posted in Anxiety, Awareness / Advocacy, Dealing with the public | Tagged , | 2 Comments

Transition starts now….

  I am a procrastinator by nature.  Despite years of effort to change that, and despite those many, many times I barely skated in just before a deadline (or even just after) – I still often wait until the 11th … Continue reading

Posted in Awareness / Advocacy, College, Dealing with the public, Education, Overcoming obstacles, Transition, Uncategorized | 2 Comments

How Much for a Cure?

So – nobody won the Mega Millions jackpot last night, which means that it is likely to reach over $250 million for the next draw.  I don’t know about you, but when I think about that kind of money, what … Continue reading

Posted in Awareness / Advocacy, Diagnosis, Flares, Remission, Uncategorized | Tagged , , , , , | 2 Comments

Edge of Seventeen….

My daughter Caitlin, my oldest child, turns seventeen tomorrow. Writing it, saying it – doesn’t make it any more believable.  Wasn’t I just carrying her in a backpack? Weren’t we just painting the bedroom pink and thrilling over Princess sheets and … Continue reading

Posted in Awareness / Advocacy, College, Family, Overcoming obstacles, Remission | Tagged , , | 5 Comments

Back in the Saddle, CCC 2014

I was going to start with an apology intended for those that have no interest in reading about this particular event – but I changed my mind.  Because, frankly, I’m too dang proud of my husband and the other 190 … Continue reading

Posted in Awareness / Advocacy, CCC, Education, Overcoming obstacles | Tagged , , | 1 Comment

Musings on the ice bucket….

I don’t suppose there is any way you could have missed this, because it has been EVERYWHERE. And every day, I think “Surely it is waning… I am seeing the last of it…”, but for weeks, I am consistently proven … Continue reading

Posted in Awareness / Advocacy, Education | Tagged , | 8 Comments

JA Conference in Keystone!

So – Here we are again at our family reunion! It was a bit of a journey to get here… 19 hours driving from California in the family minivan.  Caitlin rode out in another friend’s car – so it was … Continue reading

Posted in Awareness / Advocacy, Education, Family, Juvenile Arthritis Conference | Tagged , , | 2 Comments