Category Archives: Dealing with the public

(Not such a) Peaceful Easy Feeling

So.  Glenn Frey died today. This makes me sad and weary in numerous ways, especially given all the brilliance that has become ethereal in the past few weeks. It makes me sad as a fan, because the Eagles have been … Continue reading

Posted in Anxiety, Awareness / Advocacy, Dealing with the public | Tagged , | 2 Comments

Transition starts now….

  I am a procrastinator by nature.  Despite years of effort to change that, and despite those many, many times I barely skated in just before a deadline (or even just after) – I still often wait until the 11th … Continue reading

Posted in Awareness / Advocacy, College, Dealing with the public, Education, Overcoming obstacles, Transition, Uncategorized | 2 Comments

I hope you dance….

I wasn’t prepared to cry, really.  I was excited, and maybe a little bit nervous for her.  But I wasn’t prepared for the floodgate to open. It was so simple and mundane – so normal for most parents.  Just one number … Continue reading

Posted in Dealing with the public, Overcoming obstacles | Tagged , | 11 Comments

Thorny Fallout….

I was totally unprepared for the response to my blog last week.  Really… really unprepared. Can I just say that I started writing a blog for me.. and for my family so they would not always have to hear me … Continue reading

Posted in Alternative Therapies, Awareness / Advocacy, Dealing with the public, Education, Overcoming obstacles, Uncategorized | Tagged , | 9 Comments

Gut Reaction….

I’m sure you’ve probably seen the article in NY Times magazine, published two days ago.  It was the most e-mailed article yesterday, and certainly generated a lot of buzz among those in the juvenile arthritis community. In the article, a … Continue reading

Posted in Alternative Therapies, Anxiety, Dealing with the public, Diagnosis, Education, Medications, Remission, Uncategorized | Tagged | 23 Comments

JA Conference 2013 – Dream, Believe, Achieve

“Go confidently in the direction of your dreams.  Live the life you have imagined.” Henry David Thoreau I’ve written about conference a couple of times before, and it’s clearly been very important to my family. Even after years of “education”, I … Continue reading

Posted in Awareness / Advocacy, Dealing with the public, Education, Family, Juvenile Arthritis Conference | 4 Comments

It’s a Wonderful Life…

It’s Christmas Eve…and as I tuck away with all my loved ones to enjoy the blessings of this life, I reflexively ponder all the years that the light and joy of the season were shadowed by Arthritis . The years my daughter could … Continue reading

Posted in Arthritis Walk, Awareness / Advocacy, Dealing with the public, Family, Overcoming obstacles, Remission, Uncategorized | 6 Comments