Category Archives: Family

Edge of Seventeen….

My daughter Caitlin, my oldest child, turns seventeen tomorrow. Writing it, saying it – doesn’t make it any more believable.  Wasn’t I just carrying her in a backpack? Weren’t we just painting the bedroom pink and thrilling over Princess sheets and … Continue reading

Posted in Awareness / Advocacy, College, Family, Overcoming obstacles, Remission | Tagged , , | 3 Comments

JA Conference in Keystone!

So – Here we are again at our family reunion! It was a bit of a journey to get here… 19 hours driving from California in the family minivan.  Caitlin rode out in another friend’s car – so it was … Continue reading

Posted in Awareness / Advocacy, Education, Family, Juvenile Arthritis Conference | Tagged , , | 2 Comments

Riding for a Cure – Days 1 and 2!!

The California Coast Classic has just kicked off again, which means my husband is now riding his bike 525 miles down the coast of California.  He’s in good company with 215 other riders – and they are doing it to raise … Continue reading

Posted in Awareness / Advocacy, CCC, Family, Uncategorized | 1 Comment

My JA Family

” Family is like music. Some high notes, some low notes. But always a beautiful song.” I have a huge family – I mean tremendously gigantic. I’ve never even met most of them and probably never will, because there are … Continue reading

Posted in Awareness / Advocacy, Family, Juvenile Arthritis Conference, Overcoming obstacles | Tagged , | 7 Comments

Super JA Mom

Today, on Mother’s Day,  I am celebrating the women in my life, who have nurtured and mentored and created beauty.  They have taught me, shared, and supported and loved freely. Not all of them are mothers – some are aunts, some … Continue reading

Posted in Education, Family, Overcoming obstacles | Tagged , , | 4 Comments

The Super-Magnificent, Splendiferous 100th Post!!!

OK… It’s not all that spectacular, really.  But in honor of this 100th post, I thought I would take a look back at where we were when I first started this blog, in September of 2009, and compare it to … Continue reading

Posted in Actemra - Tocilizumab, Anxiety, Awareness / Advocacy, Education, Family, Overcoming obstacles, Remission, Surgery, Uncategorized | 2 Comments

JA Conference 2013 – Dream, Believe, Achieve

“Go confidently in the direction of your dreams.  Live the life you have imagined.” Henry David Thoreau I’ve written about conference a couple of times before, and it’s clearly been very important to my family. Even after years of “education”, I … Continue reading

Posted in Awareness / Advocacy, Dealing with the public, Education, Family, Juvenile Arthritis Conference | 4 Comments