Category Archives: Remission

We are officially PRN (aka kicked out:) )

So, we had a rheumatology visit last week.  I’m embarrassed to say it was our first visit in a YEAR.  Our last visit was in May, 2014.  We had another scheduled last September – and then the doctor needed to reschedule … Continue reading

Posted in Overcoming obstacles, Remission | Tagged , , , , , | 8 Comments

How Much for a Cure?

So – nobody won the Mega Millions jackpot last night, which means that it is likely to reach over $250 million for the next draw.  I don’t know about you, but when I think about that kind of money, what … Continue reading

Posted in Awareness / Advocacy, Diagnosis, Flares, Remission, Uncategorized | Tagged , , , , , | 2 Comments

Edge of Seventeen….

My daughter Caitlin, my oldest child, turns seventeen tomorrow. Writing it, saying it – doesn’t make it any more believable.  Wasn’t I just carrying her in a backpack? Weren’t we just painting the bedroom pink and thrilling over Princess sheets and … Continue reading

Posted in Awareness / Advocacy, College, Family, Overcoming obstacles, Remission | Tagged , , | 5 Comments

The party’s over….or at least on hiatus

Well, it’s been two years since Caitlin had her last infusion of Actemra.  Two years since she took her last dose of methotrexate.   Two great years of remission – of vacation from almost everything we lived with her systemic juvenile … Continue reading

Posted in Flares, Humira, Methotrexate, Pain, Prednisone, Remission | Tagged , | 19 Comments

The Super-Magnificent, Splendiferous 100th Post!!!

OK… It’s not all that spectacular, really.  But in honor of this 100th post, I thought I would take a look back at where we were when I first started this blog, in September of 2009, and compare it to … Continue reading

Posted in Actemra - Tocilizumab, Anxiety, Awareness / Advocacy, Education, Family, Overcoming obstacles, Remission, Surgery, Uncategorized | 2 Comments

Gut Reaction….

I’m sure you’ve probably seen the article in NY Times magazine, published two days ago.  It was the most e-mailed article yesterday, and certainly generated a lot of buzz among those in the juvenile arthritis community. In the article, a … Continue reading

Posted in Alternative Therapies, Anxiety, Dealing with the public, Diagnosis, Education, Medications, Remission, Uncategorized | Tagged | 23 Comments

It’s a Wonderful Life…

It’s Christmas Eve…and as I tuck away with all my loved ones to enjoy the blessings of this life, I reflexively ponder all the years that the light and joy of the season were shadowed by Arthritis . The years my daughter could … Continue reading

Posted in Arthritis Walk, Awareness / Advocacy, Dealing with the public, Family, Overcoming obstacles, Remission, Uncategorized | 6 Comments

Cease Fire….

I have often said that our experience with arthritis has been like a war – a series of battles.  It’s been one step forwards and two steps back, constantly searching for the right treatment and waiting to catch a break.  … Continue reading

Posted in Actemra - Tocilizumab, Awareness / Advocacy, Diagnosis, Prednisone, Remission | 1 Comment

Last Infusion – Fingers Crossed!

“Courage is resistance to fear, mastery of fear… not absence of fear.” Mark Twain Caitlin had her last infusion of Actemra last Thursday.  At least, that’s what we currently believe. It had been four months since her last infusion.  The … Continue reading

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The “R” Word

I remember the first time her doctor ever used the “R” word. It was Wednesday, May 10, 2006. We had an early morning appointment and I remember being hopeful, but cautious. We had discontinued Humira some six months earlier because … Continue reading

Posted in Actemra - Tocilizumab, Humira, Medications, Methotrexate, Remission | Leave a comment