Tag Archives: juvenile arthritis

How Much for a Cure?

So – nobody won the Mega Millions jackpot last night, which means that it is likely to reach over $250 million for the next draw.  I don’t know about you, but when I think about that kind of money, what … Continue reading

Posted in Awareness / Advocacy, Diagnosis, Flares, Remission, Uncategorized | Tagged , , , , , | 2 Comments

The party’s over….or at least on hiatus

Well, it’s been two years since Caitlin had her last infusion of Actemra.  Two years since she took her last dose of methotrexate.   Two great years of remission – of vacation from almost everything we lived with her systemic juvenile … Continue reading

Posted in Flares, Humira, Methotrexate, Pain, Prednisone, Remission | Tagged , | 19 Comments

Now, you’ve heard of JAALG….

  “Always remember that the future comes one day at a time.” In all the volunteer work and advocacy I’ve done around juvenile arthritis, it’s one of my greatest privileges and accomplishments… and yet you’ve probably never heard of it. … Continue reading

Posted in Awareness / Advocacy, Education, Juvenile Arthritis Conference | Tagged , , | Leave a comment

Micro-Movement Blues

The pain started again three weeks ago.  It was familair…but not in the oncoming flare familiar sort of way.  No fevers. No hot swollen joints.  Just really bad pain in her left hip.  It reminded me of the days that … Continue reading

Posted in Pain, Surgery, Uncategorized | Tagged , | 1 Comment