Category Archives: Overcoming obstacles

We are officially PRN (aka kicked out:) )

So, we had a rheumatology visit last week.  I’m embarrassed to say it was our first visit in a YEAR.  Our last visit was in May, 2014.  We had another scheduled last September – and then the doctor needed to reschedule … Continue reading

Posted in Overcoming obstacles, Remission | Tagged , , , , , | 3 Comments

Edge of Seventeen….

My daughter Caitlin, my oldest child, turns seventeen tomorrow. Writing it, saying it – doesn’t make it any more believable.  Wasn’t I just carrying her in a backpack? Weren’t we just painting the bedroom pink and thrilling over Princess sheets and … Continue reading

Posted in Awareness / Advocacy, College, Family, Overcoming obstacles, Remission | Tagged , , | 4 Comments

Big Sur, big moments….CCC days 3 and 4

  “Courage and perseverance have a magical talisman, before which difficulties disappear and obstacles vanish into thin air.”  John Quincy Adams So, the riders actually made it to Big Sur on Monday…and soaked their feet in the river, sitting in … Continue reading

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Back in the Saddle, CCC 2014

I was going to start with an apology intended for those that have no interest in reading about this particular event – but I changed my mind.  Because, frankly, I’m too dang proud of my husband and the other 190 … Continue reading

Posted in Awareness / Advocacy, CCC, Education, Overcoming obstacles | Tagged , , | 1 Comment

I hope you dance….

I wasn’t prepared to cry, really.  I was excited, and maybe a little bit nervous for her.  But I wasn’t prepared for the floodgate to open. It was so simple and mundane – so normal for most parents.  Just one number … Continue reading

Posted in Dealing with the public, Overcoming obstacles | Tagged , | 11 Comments

My JA Family

” Family is like music. Some high notes, some low notes. But always a beautiful song.” I have a huge family – I mean tremendously gigantic. I’ve never even met most of them and probably never will, because there are … Continue reading

Posted in Awareness / Advocacy, Family, Juvenile Arthritis Conference, Overcoming obstacles | Tagged , | 9 Comments

Super JA Mom

Today, on Mother’s Day,  I am celebrating the women in my life, who have nurtured and mentored and created beauty.  They have taught me, shared, and supported and loved freely. Not all of them are mothers – some are aunts, some … Continue reading

Posted in Education, Family, Overcoming obstacles | Tagged , , | 4 Comments