Category Archives: Uncategorized

21!

Posted on April 9, 2019 by jiamom

Unbelievably, Caitlin is 21 today. The last few years especially have gone by at a head spinning pace…. at least for me.  I tell my kids that life is a lot like one of those funnels at the science museum: … Continue reading →

Posted in Uncategorized | 3 Comments

Matt Iseman- Our Celebrity Warrior

Posted on February 12, 2017 by jiamom

OK.  So this one unfortunately has to start with major disclaimers.  I’m so eager to have you get to the meat of my message, that I have to start with all the caveats that will get you past all the … Continue reading →

Posted in Awareness / Advocacy, Dealing with the public, Family, Overcoming obstacles, Uncategorized | Tagged , , , , | Leave a comment

Transition starts now….

Posted on December 3, 2015 by jiamom

  I am a procrastinator by nature.  Despite years of effort to change that, and despite those many, many times I barely skated in just before a deadline (or even just after) – I still often wait until the 11th … Continue reading →

Posted in Awareness / Advocacy, College, Dealing with the public, Education, Overcoming obstacles, Transition, Uncategorized | 2 Comments

Storm Clouds and Silver Linings

Posted on September 24, 2015 by jiamom

I think of myself as an optimistic person. In general, I feel that attitude is one of our best personal tools and that to a great degree, we cannot control what happens to us, only how we respond to it. … Continue reading →

Posted in Uncategorized | 3 Comments

How Much for a Cure?

Posted on May 31, 2015 by jiamom

So – nobody won the Mega Millions jackpot last night, which means that it is likely to reach over $250 million for the next draw.  I don’t know about you, but when I think about that kind of money, what … Continue reading →

Posted in Awareness / Advocacy, Diagnosis, Flares, Remission, Uncategorized | Tagged , , , , , | 2 Comments

Days 3 and 4 – Big Sur and San Simeon

Posted on October 2, 2013 by jiamom

The most beautiful days on the tour also coincide with the weakest cell phone service.  So, we actually never got to talk to Dave much on Monday, as the group rode 40 miles down the gorgeous California Coast to Big Sur … Continue reading →

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Riding for a Cure – Days 1 and 2!!

Posted on September 30, 2013 by jiamom

The California Coast Classic has just kicked off again, which means my husband is now riding his bike 525 miles down the coast of California.  He’s in good company with 215 other riders – and they are doing it to raise … Continue reading →

Posted in Awareness / Advocacy, CCC, Family, Uncategorized | 1 Comment

The Super-Magnificent, Splendiferous 100th Post!!!

Posted on April 9, 2013 by jiamom

OK… It’s not all that spectacular, really.  But in honor of this 100th post, I thought I would take a look back at where we were when I first started this blog, in September of 2009, and compare it to … Continue reading →

Posted in Actemra - Tocilizumab, Anxiety, Awareness / Advocacy, Education, Family, Overcoming obstacles, Remission, Surgery, Uncategorized | 2 Comments

Thorny Fallout….

Posted on February 13, 2013 by jiamom

I was totally unprepared for the response to my blog last week.  Really… really unprepared. Can I just say that I started writing a blog for me.. and for my family so they would not always have to hear me … Continue reading →

Posted in Alternative Therapies, Awareness / Advocacy, Dealing with the public, Education, Overcoming obstacles, Uncategorized | Tagged , | 9 Comments

Gut Reaction….

Posted on February 3, 2013 by jiamom

I’m sure you’ve probably seen the article in NY Times magazine, published two days ago.  It was the most e-mailed article yesterday, and certainly generated a lot of buzz among those in the juvenile arthritis community. In the article, a … Continue reading →

Posted in Alternative Therapies, Anxiety, Dealing with the public, Diagnosis, Education, Medications, Remission, Uncategorized | Tagged | 23 Comments