Category Archives: Uncategorized

Matt Iseman- Our Celebrity Warrior

OK.  So this one unfortunately has to start with major disclaimers.  I’m so eager to have you get to the meat of my message, that I have to start with all the caveats that will get you past all the … Continue reading

Posted in Awareness / Advocacy, Dealing with the public, Family, Overcoming obstacles, Uncategorized | Tagged , , , , | Leave a comment

Transition starts now….

  I am a procrastinator by nature.  Despite years of effort to change that, and despite those many, many times I barely skated in just before a deadline (or even just after) – I still often wait until the 11th … Continue reading

Posted in Awareness / Advocacy, College, Dealing with the public, Education, Overcoming obstacles, Transition, Uncategorized | 2 Comments

Storm Clouds and Silver Linings

I think of myself as an optimistic person. In general, I feel that attitude is one of our best personal tools and that to a great degree, we cannot control what happens to us, only how we respond to it. … Continue reading

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How Much for a Cure?

So – nobody won the Mega Millions jackpot last night, which means that it is likely to reach over $250 million for the next draw.  I don’t know about you, but when I think about that kind of money, what … Continue reading

Posted in Awareness / Advocacy, Diagnosis, Flares, Remission, Uncategorized | Tagged , , , , , | 2 Comments

Days 3 and 4 – Big Sur and San Simeon

The most beautiful days on the tour also coincide with the weakest cell phone service.  So, we actually never got to talk to Dave much on Monday, as the group rode 40 miles down the gorgeous California Coast to Big Sur … Continue reading

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Riding for a Cure – Days 1 and 2!!

The California Coast Classic has just kicked off again, which means my husband is now riding his bike 525 miles down the coast of California.  He’s in good company with 215 other riders – and they are doing it to raise … Continue reading

Posted in Awareness / Advocacy, CCC, Family, Uncategorized | 1 Comment

The Super-Magnificent, Splendiferous 100th Post!!!

OK… It’s not all that spectacular, really.  But in honor of this 100th post, I thought I would take a look back at where we were when I first started this blog, in September of 2009, and compare it to … Continue reading

Posted in Actemra - Tocilizumab, Anxiety, Awareness / Advocacy, Education, Family, Overcoming obstacles, Remission, Surgery, Uncategorized | 2 Comments