Category Archives: Pain

The party’s over….or at least on hiatus

Posted on October 12, 2013 by jiamom

Well, it’s been two years since Caitlin had her last infusion of Actemra.  Two years since she took her last dose of methotrexate.   Two great years of remission – of vacation from almost everything we lived with her systemic juvenile … Continue reading →

Posted in Flares, Humira, Methotrexate, Pain, Prednisone, Remission | Tagged , | 19 Comments

Big Sur…..

Posted on September 13, 2012 by jiamom

I think if there was a moment that I truly envy Dave’s experience on this ride… well, there are many – but if I had to pick a few, this would be up there. It’s the moment when the riders … Continue reading →

Posted in Awareness / Advocacy, CCC, Overcoming obstacles, Pain, Prednisone, Uncategorized | 2 Comments

Down to Monterey

Posted on September 11, 2012 by jiamom

‘The best way out is always through…”   Robert Frost Today was a rough day on the home front… but it served as a reminder of why Dave rides.  After sleeping somewhat in the car, and getting to bed about midnight … Continue reading →

Posted in Awareness / Advocacy, CCC, Overcoming obstacles, Pain | Leave a comment

Action… not Sympathy.

Posted on August 28, 2012 by jiamom

I’ve just returned from the annual development conference for the Arthritis Foundation.  It’s two and a half days of really intense training sessions intended to increase our ability to serve the mission – which is to Improve Lives.  Specifically, if … Continue reading →

Posted in Awareness / Advocacy, Dealing with the public, Diagnosis, Family, Overcoming obstacles, Pain | 1 Comment

Healing Hands Part Deux

Posted on August 17, 2012 by jiamom

Last year, on October 12, my daughter, husband and I spent the evening at our local Massage Envy for the Healing Hands for Arthritis Event.  We were so excited by the prospect that $10 from every massage was being donated … Continue reading →

Posted in Awareness / Advocacy, Family, Pain | Tagged , , , , | 1 Comment

Micro-Movement Blues

Posted on February 16, 2012 by jiamom

The pain started again three weeks ago.  It was familair…but not in the oncoming flare familiar sort of way.  No fevers. No hot swollen joints.  Just really bad pain in her left hip.  It reminded me of the days that … Continue reading →

Posted in Pain, Surgery, Uncategorized | Tagged , | 1 Comment

Night night, sleep tight….

Posted on November 29, 2011 by jiamom

Sleep that knits up the ravelled sleave of care The death of each day’s life, sore labour’s bath Balm of hurt minds, great nature’s second course, Chief nourisher in life’s feast. ~William Shakespeare, Macbeth When Caitlin was two, she learned … Continue reading →

Posted in Alternative Therapies, Anxiety, Family, Overcoming obstacles, Pain, Prednisone | 1 Comment

Healing Hands for Arthritis…..

Posted on October 6, 2011 by jiamom

This is a public service announcement… and I am officially on my soap box. Next Wednesday, October 12, is World Arthritis Day.  So, it was the perfect choice as a target date for a special event heralding the new partnership … Continue reading →

Posted in Alternative Therapies, Awareness / Advocacy, Dealing with the public, Education, Pain, Uncategorized | Tagged , , | 1 Comment

Surgery Day

Posted on November 16, 2010 by jiamom

It’s hard to find the words to describe the day…. exhausted and amazed at the tail end of it. We began before dawn at 4:30am. From the moment my daughter opened her eyes, she has been heroic. I don’t use … Continue reading →

Posted in Overcoming obstacles, Pain, Surgery | 1 Comment

Titanium, Turkey and Mashed Potatoes….

Posted on September 27, 2010 by jiamom

Well, it looks like we’re going to having some new titanium to appreciate at Thanksgiving this year. When the family comes to town to enjoy my husband’s fantastic turkey, and my momentous mashed potatoes and chocolate mousse malt ball pie … Continue reading →

Posted in Actemra - Tocilizumab, Family, Pain, Surgery | Leave a comment